When working with the media, we have to be careful to avoid accidentally creating negative narratives about autistic people. Honest omissions or mistakes can have repercussions such as professional reputational damage, so we as the interviewee need to play our part to prevent undesirable portrayals.
For example in the Today article about myself, the reporter did not ask enough questions about my background to be able to obtain an accurate and comprehensive background. If a reporter asks too few questions, we as the interviewee must make an effort to check on the narrative being constructed and help fill in any gaps of knowledge or understanding.
Remember to ask for a name card or take down the reporter’s contact information. If we realised after the interview that we have missed out on mentioning certain facts and issues to the reporter, we can still send this additional information by email. Do remember to follow up with an SMS/WhatsApp/Telegram message to bring this email to the attention of the reporter. By supporting reporters in doing their job well, we also help ourselves to be properly represented.
It is also very important to remind the reporter about why certain issues are very sensitive to us. For instance, I won’t care much about me being described as “a person with autism” or as “an autistic person”. However, when it comes to my employment history, I am very concerned as any doubts about my competency and personal integrity will affect my future employability. For example, in the article:
Inaccuracy: I hid my diagnosis. [This implies deception and thus can be considered defamatory.]
Actually: The job application form did not require me to declare that I am autistic. I simply chose not to mention it.
Incomplete: I left due to stress from that third job (which was the highest paying job I ever had).
Actually: I was one of the people in charge of a centre that handled thousands of clients daily. I was required to manage a small team, handle demanding customers and work overtime daily to clear the heavy workload. This is something that autistic people are usually not expected to be able to cope with.
It is also important that we provide additional context to the reporter when the relevant questions were not asked. For example:
- The other 3 jobs were offered to me because people were aware of my competency with IT; I did not obtain them by job hunting.
- Except for a short stint in a small business where both the manager and the only other employee played office politics against me, I was popular and well-liked at work. When I offered my resignation, co-workers tried to persuade me to change my mind.
- Although I was unable to do well as a manager in the third job, I took the initiative to suggest and helped implement strategic suggestions to improve workplace operations. I went beyond my role to compile work processes into a document spanning 80+ pages as Standard Operating Procedures for everyone to follow.
- I was in my fourth job for more than 8 years which involved IT support as well as psychometric assessment and development work. I recently started my freelancing business so I can focus better on the Action For Autistics Masterplan and support the Autism Enabling Masterplan.
If the reporter is unfamiliar with autism/disability support, we the interviewee should take the initiative to suggest different perspectives that are empowering rather than disempowering for the autistic community. As an example:
- Inclusive Equality: My participation in the movement where autistics are recognised as important and equal partners to sculpt the policies that affect them. Nothing about us without us.
- Leadership: How I demonstrated that autistics can create change by leading community projects even without funding and university-level qualifications.
- Competency: How I demonstrated that autistics can be highly employable. Other than full-time employment, I also found success in my freelance business despite having not advertised it.
- Personal Growth: How I demonstrated that autistics can become self-reliant and competent through personal choice and effort.
- Awareness: How I had purposely dressed up differently for the media to dispel the myth that male autistics are nerdy and socially clueless recluses disconnected from mainstream society.
- Advocacy: A case study of how I started autistic-led autism advocacy in Singapore and Greater China to how I am actively participating in policy-making and launching community-led initiatives; this can inspire the younger generation of advocates.
- Hidden Autistics: Raising awareness that autistics who have adapted well to mainstream society almost always choose not to identify as autistic, creating a skewed impression that all autistics are reliant on external support to function in mainstream society.
I recommend that autistic advocates request to review the draft of the news coverage before publication. Although this is not standard industry practice, it can be considered an accommodation due to us having a high risk of being misunderstood.
Another helpful measure is to read up on how the reporter has portrayed disability/autism in the past and their personal participation in supporting disenfranchaised people. It is also important to determine the context and narrative of the interview (e.g. ask about what the news feature is for and what it aims to do), and choose not to be interviewed if the narrative does not fit into our personal beliefs.
It is also a good precaution to have recorded down the spoken interview for our reference to protect ourselves from any misunderstandings.